We talked to her doctor yesterday and decided to start some oral antibiotics. [whispering] Aww! ♬ Don’t you think we’re better together ♬ ♬ Oh Honey ♬ ♬ I think we are ♬ [Mary coughing] Good morning guys and happy Monday. Or Tuesday or whenever you’re watching this, but yesterday was Sunday for us and it was a rough morning for Mary’s lungs as she started the day and that’s been increasingly a pattern around here and so after we went to the neurologist on… What day was that, Friday, we started thinking about how basically the whole headache issues and basically Mary’s health in general were on hold until we can get in with the ENT doctor. Which that’s the beginning of August that we get in there. So we’ve got like a month that it feels like it’s too long to wait to do something about her health and so we talked to her doctor yesterday and decided to start some oral antibiotics. I just ran to the pharmacy. I took you guys with me, but I forgot to put the memory card in the camera so I’m just starting the vlog now. We have her antibiotics and so she’s gonna start on two of those and good morning, honey. The, one of the bummer parts about starting… antibiotics is she needs to be careful about sunlight with these. [Mary] And blazing diarrhea. Yeah, and diarrhea, but that’s a given any time of the year. But since it’s summertime, we’re going out on the boat and that sort of thing. We just got to be careful. Make sure… [Mary coughing] She’s not out in the sun too long because they can cause sensitivity on her skin and… Anyways, good morning guys. We… [Mary] Like a lobster, right? Lobster effect, yeah. [coughing] We’re gonna get going on our morning. We have company here. Mary’s family’s here and I feel like we take Sundays off of vlogging now, and so it feels like forever since we’ve talked to you guys and we’re excited to vlog today. I think we’re gonna go out in the boat this afternoon and it should be fun. But first… mornings. Meh. Okay, guys, we went out in the boat last night, had a blast and Wesley did some swimming and we all jumped in, enjoyed the lake and I’m gonna open up the boat. I covered it last night and didn’t do a whole lot of cleaning up. So I’m gonna get the boat cleaned up and get things packed back away so we can go out again. ♬ chill music ♬ Okay, I am working on packing the boat back up. We put all the water stuff out to dry on the deck last night so we keep a couple of our ski jackets, the more comfortable life jackets we have, under the seat over here and we put our tube, the boat doesn’t have like a ton of storage, but it does have up [Peter] here…under these seats, so we keep… [Peter] These pop-up. I gotta unbuckle them… [Peter] And…under here we keep our inflatable stuff. Here, you guys sit here and I’ll open it up. [Peter] So we’ve got a little storage bin, we’ve got our ski ropes and [Peter] Inflatable. We’ll throw some more… [Peter] inflatables in there. Okay. So, tube goes in there. We can fit this down in here. [Peter] That’s probably about it for this one. There we go. [Peter] Hey, you can make a lot of use of these storage spaces. And we also got this… [Peter] This, I think we found it at Target. But it, we thought it would be a good option because it doesn’t require as much [Peter] inflating because it’s got like a wire rim and it’s a… [Peter] net so you just inflate this outside portion, which is a lot less than an inner tube. [Peter] And so cuz it just takes time once you get out on the water and watch this. It can go like that… This is pretty nifty. I think maybe we should get another one of these. And then it’s got this little bag. Look at that! [Peter] And then we’ve got this [Peter] hatch here that we’ve got an extra life jacket so that we have enough life jackets. [Peter] We have more life jackets in there, enough for everybody on the boat and [Peter] extra oar, extra oil for the engine, Windex cuz Windex fixes everything. Look at this. A rash. Put some Windex on it. Please, please! Voula, this works! [Peter] And throw that in there too. And then… [Peter] under here is… [Peter] the engine. I’m gonna check the oil, make sure everything’s looking good before we go out today. ♬ upbeat music ♬ [Mary] Dancing dancing dancing. [Mary] If you haven’t made a sensory box, you should do it. It’s amazing. And then when Wesley’s done playing with it Rachel and I sit here and play with it. And mom. It’s a family event. ♬ upbeat music ♬ [Mary] It’s time for a horsey ride. ♬ upbeat music ♬ [Mary] These are the things of childhood. ♬ upbeat music ♬ [Mary] Ollie says that boat ride yesterday was really fun and really exhausting. [Mary] What are you making? Oh. Lobster rolls. We had lobster last night with some extra for lobster rolls. [Mary] So the way we like it is put some butter in the pan… [Mary] and kind of grill the buns a little. Cuz, you know lobster’s good with butter, so…gotta put butter on the buns. ♬ upbeat music ♬ [Mary] Cheers! Ready? Oh, yeah. ♬ upbeat music ♬ [Mary] How’s that vlog? It’s almost done. [Mary] Good work. [Mary] Oh, he’s clapping! ♬ chill music ♬ We have had a fun day just hanging out here at the house and we are gonna go out on the boat for dinner. So I’ve been grilling some chicken. I’ve got some barbecued chicken on there. I did some… [Peter] uh…like, I marinated these in Italian dressing did some… [Peter] asparagus and we’re gonna [Peter] let this cool and have it cold tonight on the boat. So once those are done, I’ll finish packing up the boat. [Peter] I’ve got most things [Peter] squared away ready to go. [Peter] I’ll pull the car down, hook up the boat and [Peter] when Wesley gets up from his nap we’ll head out. So I’ve taken my first dose of the two antibiotics and so far no side effects or anything. One of the things about those two antibiotics is that I can’t be in the sun like at all. So it’s not ideal for the summer, but it’s fine. I’m usually pretty cautious anyway. There was a summer that I was on an antifungal for my lungs and I couldn’t be in the sun like at all. So I just got used to like having an umbrella with me all the time. So I’ll just do that for the next couple weeks that I’m on these antibiotics, and I’m just really hoping that they help not only with my sinuses but also potentially with like my lungs and just like mornings have been getting rougher and all that. So we’ll see. We’ll see what happens. I just woke up from a little nap, which felt good. But yeah, just doing my thing. Enjoying the day. Doing what I need to with my body. Life. Right? [chuckling] ♬ chill music ♬ [Mary] Hat rescue. [Peter] Yeah! [Mary] You got t! [Mary] Awesome. Good teamwork. [Mary] There was a spider? [Peter] On the water. [Mary] On mom! ♬ chill music ♬ I hope you guys enjoyed that fun little day of family time and time on the water. Memory making. [sighs] Mary… has done two doses of her antibiotics and we’re hoping that with time maybe that can… give her body a little bit of a relief. Yeah. We’re gonna get some sleep and… [both] As always, we will see you tomorrow. Good night! ♬ I wonder how many times we’ve said that? A lot, a lot, a lot. And this little guy is a tired tired puppy. ♬♬


  1. Could there be anything better than soaking up these amazing moments with my family? Thanks for coming along with us on this journey called life. Let me know in the comments- are you a boat person? Do you enjoy being on the water in a canoe? Kayak? Floatie? Boat?

  2. Mary have you thought to see if your team could maybe call the ENT office and have you seen sooner ? Emergency appointment or something so you don’t have to wait so long ? I hope you feel better soon ??

  3. Y'all should put one of those air pumps that you can put batteries in air up your floatable so you don't have to blow them up

  4. For Mary with the meds irritating her stomach try yogurt or acidophilus that will help with the intestinal issues

  5. Hello fro Virginia’s eastern shore! Love boating, in fact my husband wants to move on board a sailboat once our house sells.Blessings to you and your family.

  6. Mary great to have your family with you,your mom looks good,and sister and her baby,hes growing,your dad is strong,carry baby on his back,young at heart? feel better soon,it hurts me seeing you go threw this,but you are not alone,and peter and ollie right by yoursids,you still in that sun,no,no,listern to your body,dont push yourself,injoy family,but know when its best to relax,i know you want to do things with them and not miss out on that special time,but sometimes we have too,to keep ourself you and your family,good seeing them all toghter for you,peter,ollie.the Frey family.Peter loves that grill,hes good on that,can cook anything,and it looks great each time.?????????

  7. I'm half way through 2 week course of oral antibiotics that have similar warning about staying out of sun but finding it impossible as in the middle of a rare heatwave here in uk, and I'm on holiday at moment and am addicted to feeling sun rays on my skin. Paid the price couple of days where got really sunburnt (I can normally take sun a lot better)'so now trying to be more sensible, but soooooo hard 🙁

  8. You need a canopy for your boat, so you don't have to worry about the sun..Maybe Peter can make one out of some PVC pipe and a tarp, to just go above one section..Maybe go out after the sun sets since it stays light out until after 9:00 p.m…Have a great summer, love you both. 🙂

  9. Oh poor Mary and that coughing. I gag a LOT every morning from thick post nasal drip that just won't let up and ugh. But i am praying for you

  10. Baby feet get me every timeeeeeeee. Love y’all I watch daily but I especially love seeing y’all spend precious time with the ones y’all love most. Makes the vlog that much more special

  11. Thank you for sharing your beautiful moments with us today I was feeling a little down after I watch your video I feel better thank you God bless you and your beautiful family Mary I hope you get better soon ?????????????????

  12. That baby has grown since we saw him last. He's having so much fun playing. I've never thought of a small sandbox of beans. Genius. ?

  13. Before I became an antique, I did love the boating experience. Big or little, boating was a great way to spend the summer. My kids and I had the luxury of spending the majority of the summer camping by the merge of The American River and Sacramento River. Memories are made of this!
    Your Dad is a great granddad. What a sport to let you film him as a horse. Even had sound effects. This is priceless!

    You both have amazing, loving families. So glad you share them with us. Thank them for me, will you?
    Peace, Love and Light to all.

  14. Ollie might enjoy “bobbing” for hot dogs in the water box. Charlie needs a LOT of help, but Gracie could be a professional! Just drop the cold hot dogs into the water and he and Wesley will have so much fun….

  15. Can you please do a q&a with your sister. CF treatment after transplant compared to your day to day treatment. Would love to know the difference. Thank you ❤ ❤

  16. Wesley is so cute from what we can tell. When will be he’s unveiling? I know one thing he’s loved the way every child should be

  17. You don't take a probiotic when you are on antibiotics? I was being treated for MRSA and ended up being on IV and oral antibiotics for almost two years. My doctor recommended me to take Florastor. I'm done with the antibiotics but still take Florastor twice daily. I'm sure you know the dangers of getting C-dif if you take frequent antibiotics. =)

  18. My boyfriend once had to take antibiotics which were supposed to make you photosensitive, he didn't get a rash from the sun, but his skin went numb all over! ? Hope you don't suffer any adverse effects Mary xxx

  19. i hope you feel better may you be filled with peace and joy and wellness peace be with you and peter and ollie boy nice to see your family there

  20. Will we be introduced to Mary's nephew? He's so cute from the back and sides. Would love to see his darling little face.

  21. Mary needs to invest in a nice boating hat and a nice airy top to protect her shoulders and arms. It would be stylish and protect her from the sun while on the antibiotics.

  22. I just love that part with Mary and Ollie on the front of the boat. Ollie looks like he just wants go jump in !

  23. Can Mary take probiotics when she's on the antibiotics? I always take them now; just off Bactrim and I took them 2 hours after each Bactrim dose–really helps replace the good bacteria in your system.

  24. The green and blue mesh inflatable is great. We have several and they give you just enough flotation and aren’t too cumbersome to fill up or store!

  25. Oh baby, get some UV protectant clothing (long sleeve), use your sunscreen under it and wherever the clothing doesn't cover. Make sure to get BROAD SPECTRUM sunscreen. Hugs from Florida ❤

  26. I’m on antibiotics for Lyme and am not supposed to be in the sun. Kinda stinks for summer but I’d rather NOT have Lyme haha!!

  27. Omg I was so happy you referenced my big fat Greek wedding! Every time I use that line, no one would ever understand!

  28. Definitely ocean people, boat, paddling canoe, surfboard, or kayak. Love it, most days it's not abnormal to see ppl surf early am or late evenings. Saw a pod of dolphins swimming next to our boat last week, beautiful. It's beautiful to see your parents enjoy becoming grandparents, their smitten. Wesley is precious!

  29. Totally with you on the sensory tub /table etc. Pre-k teacher. So so much stuff you can put into them and do in them!!!

  30. Those precious toes?. I’m enjoying all the boat footage. Did Mary call it “blazing diarrhea “? Perfect name regardless and it made me laugh.???

  31. We are boat people, bass boats to be exact. Thank you for that video. It was so calming and sweet. I really enjoyed it. Wonderful family!

  32. We love to kayak. We can go from our dock across the lake and hit the beach! It’s amazing. Hope,you,feel better soon. And as Walt Disney would say….keep moving forward.

  33. Is there any possibility of your CF doctor or the neurologist talking to the ENT to hasten the appointment? U guys probably explored that, but it was just a thought, as I remember Mary saying that her sinuses were quite junky lately-the sinuses seem to be really making things worse by the sounds. We are thinking of u! We are praying the ENT appointment happens ASAP, and that they can offer u at least some relief…really hoping for a fix-but we know fixes when CF is involved, is quite a bit harder/more difficult!! Hang in there Mary & Peter!!! Sending u Hugs!!!

  34. That’s a good game!!! Wesley says-Aunty Mary will pick my cup up for me…gotta keep her busy!!! Lol!!!?

  35. Nothing like a tote bin swim!!!! SO ADORABLE!!!! And those hands…Wesley is very expressive with those hands of his!!! Gorgeous!!!! ❤️

  36. Family time is always a great time! Thanks for sharing you two xo
    Be well Mary, and I hope these antibiotics are just what the dr ordered:) Positive vibes your way xo

  37. You guys are so awesome at showing us little Wesley, but keeping his identity private…Thankyou so much for sharing such precious family moments with us, that is very difficult to do under the circumstances. He is so precious…adorable…very obviously adored and cherished by the ENTIRE family!!! Rachel seems to be a natural momma!!! Enjoy, and soak it all up guys!!! #FamilyISEverything!!!!

  38. So glad your doctors are proactive with your health. Hope you feel better soon. Take care Mary, Peter, Ollie and of course all of Mary's family.

  39. Is Mary's sinus infection fungal? Depending on the antibiotics it could make it worse. I'm living with a chronic fungal sinus infection. Waiting surgery approval. Good luck Mary. I enjoy watching your channel. ??

  40. I'm so glad you're getting to enjoy your awesome little nephew! I can't have children of my own either, also (mainly) for medical reasons & being an aunt is the best thing in the world. I have a four year old niece, a niece who's just about to turn one & my nephew will be one at the end of October. They're such a joy to the whole family.

  41. The windex clip was priceless! Your family time looks like such fun! Loving the boat too! I hope you jabe some better body days ahead Mary!

  42. Love watching you guys every day. I have Cerebral palsy and you guys inspire me each and every day to “Do what I think I cant do“

  43. Ugh I've been there with the sun and antibiotics! Just wear long sleeved shirts that are loose fitting (for staying cool). Also try and wear a hat to keep your face safe!

  44. Oh my goodness, I can’t believe how fast Wesley is growing. His cute little fee, walking around, your Dad giving him a piggyback ride and you both getting love from him makes me love him too! I love both of your families so much.

  45. Unfortunately that's a common issue with anything "anti". I was on a LOT of 'anti' drugs & it made me deathly ill. Spent 3.5 weeks in hospital and came away with a Gastroparesis DX (among half a dozen other DX's). Thankfully I only had to be on Antibiotic for 10 days, removed from all my 'anti' drugs except antidepressant (2) but…any 'anti' drugs will cause diarrhea. so far…knock on wood…I've not had any problems in that area with my antidepressants. first time in 2 yrs I've been diarrhea free…for 2 months now! I go to the dr Friday, she says there is a drug I can take to help with delayed emptying & slow motility. It's an anti drug so not sure I'm gonna take it. I'll talk to her first & see what she has to say. I've only lost 9 pounds in the last month so I think I'm doing pretty good in getting my nutrition. I was losing up to 15 pounds a month! Good Luck Mary!!!

  46. Fun for little guys: oobleck. Mix equal parts cornstarch and water. Nontoxic and easy clan up. Let dry, then brush off or vacuum up. Add foodcolring for extra fun!

  47. I am so thankful for these videos. I have CF as well. I have a common cf gene. I was recently in the hospital when I found your videos. It made me feel so much better about myself. Like i wasnt alone. All my life I struggled psychologically to take proper care of myself and constantly had the question why me? I have developed diabetes type 1 and 2 and arthritis and osteoperosis. I have recently lost 40 pounds and am having trouble eating. I have MRSA in my sinuses too. Because of these videos and because I know im not alone I have been taking such better care of myself. I want you to know you saved my life. Thank you so much. God bless you.

  48. Hi Mary & Peter! & Ollie. To answer the boat question…none! LOL. I don't like being on the water. I got sea sick one time & that ended that story right there. I like my feet firmly planted on solid ground. ? Thanks for letting us come along on your journey. Today's proving to be a struggle bus day for me. It'll get better. ?? Hope on Aug 3 you're doing better in the hospital.
    Love & prayers…

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